Care – Decolonising Global Health Archive

By Alex Broom and Katherine Kenny

This book provides a contemporary and comprehensive examination of cancer in everyday life, drawing on qualitative research with people living with cancer, their family members and health professionals. It explores the evolving and enduring affects of cancer for individuals, families and communities, with attention to the changing dynamics of survivorship, including social relations around waiting, uncertainty, hope, willfulness, obligation, responsibility and healing. Challenging simplistic deployments of survivorship and drawing on contemporary and classical social theory, it critically examines survivorship through innovative qualitative methodologies including interviews, focus groups, participant produced photos and solicited diaries. In assembling this panoramic view of cancer in the twenty-first century, it also enlivens core debates in sociology, including questions around individual agency, subjectivity, temporality, normativity, resistance, affect and embodiment. A thoughtful account of cancer embedded in the undulations of the everyday, narrated by its subjects and those who informally and formally care for them, Survivorship: A Sociology of Cancer in Everyday Life outlines new ways of thinking about survivorship for sociologists, health and medical researchers and those working in cancer care settings.

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By Marissa Mika

Over the past decade, an increasingly visible crisis of cancer in Uganda has made local and international headlines. Based on transcontinental research and public engagement with the Uganda Cancer Institute that began in 2010, Africanizing Oncology frames the cancer hospital as a microcosm of the Ugandan state, as a space where one can trace the lived experiences of Ugandans in the twentieth century. Ongoing ethnographic fieldwork, patient records, oral histories, private papers from US oncologists, American National Cancer Institute records, British colonial office reports, and even the architecture of the institute itself show how Ugandans understood and continue to shape ideas about national identity, political violence, epidemics, and economic life.

Africanizing Oncology describes the political, social, technological, and biomedical dimensions of how Ugandans created, sustained, and transformed this institute over the past half century. With insights from science and technology studies and contemporary African history, Marissa Mika’s work joins a new wave of contemporary histories of the political, technological, moral, and intellectual aspirations and actions of Africans after independence. It contributes to a growing body of work on chronic disease and situates the contemporary urgency of the mounting cancer crisis on the continent in a longer history of global cancer research and care. With its creative integration of African studies, science and technology studies, and medical anthropology, Africanizing Oncology speaks to multiple scholarly communities.

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By Jieun Kim

While Japan boasts a universal healthcare system and state-of-the-art medical technology, healthcare has often been denied to those who do not conform to moral ideals of a deserving patient. In underclass enclaves known as yoseba (day laborers’ quarter), patients have been frequently turned away or blacklisted on grounds of their abnormality and non-compliance. As much as healthcare was enmeshed in the normative bonds of family and community sanctioned by the state, yoseba men were considered as outsiders who neglected their duties of care, thus, undeserving of any form of care themselves. Focusing on the struggle for healthcare in a yoseba enclave in Yokohama over the past three decades, this paper explores how various practices of care have been improvised in this last refuge for the underclass men. The relentless endeavor pursued by local medical activists reveals how attending to yoseba patients required creative techniques of spatio-temporal attunement to make healthcare a communal project. Here, a form of “embodied belonging” was sought through bodily care coordinated among various agents and things, rather than through claims for membership in a bounded entity.

Tag: Care

Africanizing Oncology: Creativity, Crisis, and Cancer in Uganda